Elijah's Victory
Living with Neuronal Ceroid Lipofuscinosis
Type II (Late Infantile Batten Disease)
Type II (Late Infantile Batten Disease)
It has been a long time since we updated here. Things for Elijah had been calm and stable, we go through our days following our routines without much variation. So much we have written with intention to post, but has been pushed aside by the normal workings of daily life. But Elijah has now been in the hospital for a week. Fighting pneumonia and uncontrolled seizures. We are trying to keep him comfortable and trying to get him home to be comfortable. It's likely we will not gain any control over his seizures and we will just need to do our best to keep him from being in distress through each one.
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