Elijah's Victory
Living with Neuronal Ceroid Lipofuscinosis
Type II (Late Infantile Batten Disease)
Type II (Late Infantile Batten Disease)
Hi friends! Checking in to update you all on Elijah. He is over his respiratory infection, but still trying to get back to his baseline. Because of his breathing issues he hasn't been able to go back to school yet, but has been getting plenty of stimulation at home with all his sisters friends and neighbors coming to hang out. 😜 We are inviting you all to join team "Elijah's Victory" to celebrate Batten families, raise funds for research, and spread awareness of Batten Disease. This is a virtual 5K, you can complete it whenever you can, take a nap, or get together with us on June 9, International Batten Awareness Day, and we can walk or run it together. (When you follow the link scroll to the bottom to find the registration section) https://bdsra.redpodium.com/2019-batten-5k?fbclid=IwAR35SsjjK6VhXFsw6Xpfbnw_8_H5o7h2OGkg8iDnLbVMKGtd10j-Xx_TOTY
1 Comment
Frank
10/8/2019 11:42:36 pm
Your video is on youtube. It doesn't look like you are the ones that put it there. The description for the video doesn't look legit. Here is the web address
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